REAL STORIES - VIDEOS
Everybody diagnosed with neurofibromatosis has a different story to tell. We hope you are inspired and encouraged by these courageous individuals who each face NF in their own way.
Jeneece & Angie
Learn how this dynamic mom helped her daughter become an advocate for her own health care.
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Hugh is an adult sharing his experiences and insights of his life with NF2. Hugh talks of how he copes and continues to live life to the fullest despite profound deafness and other challenges.
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Suzanne shares the diagnosis of her son, Haven, with NF1 and its impact upon herself and her family. She also shares her journey of learning to advocate for a child with learning disabilities, as well as coping with the uncertainty of life with NF.
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Tim shares his message of the importance of living life with the power of positive thought and laughter.
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