Get Involved with Research

NF is one of the world’s most common genetic disorders. But it takes many forms, and can be hard to diagnose and treat.

Research is the key. And the NF Registry is the key to research.

The NF Registry is a patient-centered database initiated and managed by the Children’s Tumor Foundation.

The NF Registry allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments. Participating is safe, easy, and secure and everything can be done online at

By joining the Registry, patients (or their parents) can actively participate in the search for better treatments. The Registry now has over 7,000 participants, but needs your help to continue to grow and make a greater impact on the well-being of individuals living with NF.