Clinical trials can be an exciting opportunity for individuals affected with neurofibromatosis (NF).

A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. The treatments might be drugs, supplements, medical devices and equipment, or even things like behavioural therapy.

A clinical trial provides an opportunity to access new research treatments before they are readily available, and help others by participating in vital medical research.

Examples of potential clinical trials in NF might involve the testing of new drugs to slow or stop the growth of neurofibromatosis or meningiomas. They might be comparing different methods for neurofibroma or glioma removal, or new treatments for children with pseudarthrosis. Almost all treatments for all medical conditions have gone through clinical trials.

In the case of NF, sometimes the treatment has been used before with other disorders, but not specifically for problems associated with NF. Often times, the treatments being tested in the clinical trial may have never been tried in adults or children with the specific dosage, frequency, or method of administration that is being proposed. Sometimes, there is a new treatment that has gone through early trials and is now ready for study in people with NF.

You can find information about clinical trials recruiting participants in Canada here.