A graphic informational pamphlet to help you take charge of your symptoms.

A research-based resource for healthcare providers treating patients with NF1.

Malignant peripheral nerve sheath tumours are rare but early detection is vital.

Surgery doesn’t have to be scary. One of the best ways to reduce your fear is to empower yourself with information.

Initiating a conversation with your child about neurofibromatosis (NF) can be a daunting task for many parents. Most feel unprepared to navigate this discussion successfully. There isn’t a one-size fits- all approach and there is no singular ‘right’ or wrong’ way to have this conversation. This resource provides helpful tips and suggestions for exploring this discussion with your child.

Cutaneous and subcutaneous neurofibromas, also called dermal neurofibromas, are the most common types of neurofibromas in NF1.