Support Meetings & Connections

Are you looking for support, information and connection?

No one with NF has to walk the NF journey alone!

Consider yourself invited to join our monthly online groups for patients and parents affected by neurofibromatosis.

Connect Group for both Patients and Parents
meets the fourth Tuesday of the month at 7pm.
Patient Connect Group
meets the second Tuesday of the month at 7pm.
Parent Connect Group
meets the fourth Tuesday of the month at 7pm.

Meetings are online and run for approximately 60 minutes.

We hope you will join the community!

At this time we will only be hosting online support meetings.

Please join us Tuesdays and Thursdays as we come together to support one another during this time of social distancing and isolation. The meetings will be an opportunity for all of us to stay connected through this challenging time.

Be sure the camera and microphone on the device you're using are turned on and click on the appropriate link at the given time.

We have support meetings - both virtually and face to face.

We hope you will join us.

Online Support Group Meetings

Attend a virtual support group meeting from the comfort of your home - no matter where you live in BC!

Virtual meetings are held from 7:30-8:30pm on
Zoom, a free video conferencing platform.

Thursday, April 23
Register here

Thursday, May 21
Register here

In-Person Support Group Meetings

We meet in the home of a host family.
Space is limited.

Please email to save your
seat and to receive the address.

Saturday, March 7th 1-2:30pm

Locations to be determined

Saturday, May 2nd 1-2:30pm

Saturday, June 6th, 1-2:30pm

Join our private Facebook group for B.C. patients and their families.

We have started a Facebook group for people who are impacted by NF (either personally or a loved one) in BC. It's a place where you can share stories, ask questions, and share information. It's an uplifting, supportive, and positive group. It has had great success since we started it in early October.

People are getting to know one another by introducing themselves and sharing their stories. A couple of people have already made a connection with people who live in the same city. We would love for you to join this group! Head over to Facebook and join BC NF Families.