Neurofibromatosis is a complex, uncommon, multi-systemic genetic disorder that can prove challenging for a general practitioner who might only have a singular patient with neurofibromatosis in their practice.

With the advancement through clinical research, the management and treatment guidelines for adults with neurofibromatosis type 1 were updated in 2020.

The Tumour Foundation of BC is excited to share these updated guidelines that were developed in partnership with clinicians in both British Columbia and Ontario.

A self-management version for adult patients
is also available to download here.

If you would prefer printed copies mailed to you please complete the form in the dropdown below:

Health Supervision for Children With Neurofibromatosis Type 1

from The American Journal of Pediatrics

Care of Patients with NF Type 2

Consensus Recommendations for Current Treatments and Accelerating Clinical Trials for Patients With Neurofibromatosis Type 2

from The American Journal of Medical Genetics (Sep 2011)