Information for Medical Professionals
Neurofibromatosis type 1 (NF1)

Download it here.

New Guidelines for the Care of Adults with NF Type 1

A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type 1. This was written to help physicians treat their patients with NF1 and is a great resource to share with your doctor. It’s a wonderful piece published by the The American College of Medical Genetics and Genomics (ACMG) and written collaboratively by several NF experts.

Download it here.

Care of Patients with NF Type 2

Consensus Recommendations for Current Treatments and Accelerating Clinical Trials for Patients With Neurofibromatosis Type 2

from The American Journal of Medical Genetics (Sep 2011)