NF INFORMATION FOR MEDICAL PROFESSIONALS
Neurofibromatosis is a complex, uncommon, multi-systemic genetic disorder that can prove challenging for a general practitioner who might only have a singular patient with neurofibromatosis in their practice.
With the advancement through clinical research, the management and treatment guidelines for adults with neurofibromatosis type 1 were updated in 2020.
The Tumour Foundation of BC is excited to share these updated guidelines that were developed in partnership with clinicians in both British Columbia and Ontario.
Download the
new physician guidelines here.
A self-management version for adult patients
is also available to download here.
If you would prefer printed copies mailed to you please complete the form in the dropdown below:
ORDER FORM FOR PRINTED COPIES
Health Supervision for Children With Neurofibromatosis Type 1
from The American Journal of Pediatrics
Care of Patients with NF Type 2
Consensus Recommendations for Current Treatments and Accelerating Clinical Trials for Patients With Neurofibromatosis Type 2
from The American Journal of Medical Genetics (Sep 2011)