Welcome to the Tumour Foundation of BC.
We are so glad that you are here!
The Tumour Foundation of BC offers a range of information and support services for you and your family as you start your NF journey. Most importantly, we want you to know that you are not alone!
It is estimated that more than 2 millions people worldwide are affected with NF, making it more common than cystic fibrosis, Duchenne’s muscular dystrophy, and Huntington's disease combined.
After you receive an NF diagnosis, you may feel scared and overwhelmed. Neurofibromatosis may be a disorder you have never heard of. You may feel like you are in a foreign land and are unprepared for the journey. We are here to help and guide you along the path.
The first step is to empower yourself with more information about what the diagnosis will mean for yourself or your child and your family.
From a treatment perspective, unless there are symptoms requiring immediate medical attention, physicians will often take a “wait and see” approach. As a parent of a child newly diagnosed, this can be hard to accept. You want to take action and do something to make things better for your child. Yet often there is nothing to do. This is because all three forms of NF are variable conditions and a physician cannot predict the clinical symptoms that you or your child will experience.
Learn more about the distinct disorder that affects you or your loved one by downloading one of the Newly Diagnosed brochures below. These are generously provided by the Children’s Tumor Foundation.