BOARD & STAFF
Jill Taylor (M.Ed, PMP)
Jill Taylor manages research infrastructure projects in Victoria. Following her son’s diagnosis with NF, Jill became a member of the Tumour Foundation and has learned a great deal through the symposiums and other resources. She is passionate about improving the quality of care for those affected by NF, especially for those living outside the major centres of BC.
John (Ioannis) M Stylianou
As a scientist, John (Ioannis) M Stylianou Ph.D., spent 18 years conducting research to identify the genetic causes of common and rare diseases, starting with his PhD research in Scotland before moving to the US and more recently Canada. He has led research teams in university medical schools, non-profit research organizations, as well as the pharmaceutical industry. After contributing a wealth of discoveries to the genomics revolution, John is now Director of Precision Medicine in the Ministry of Health, where he works closely with his colleagues and stakeholders across the healthcare system and health authorities, to improve health outcomes for almost 5 million British Columbians through the delivery of precision medicine. John is passionate about complex genetic diseases that are difficult to treat and traditionally neglected, like NF, and how modern and complex medicines along with improved care delivery can positively impact patients and their families.
Lauren Yip (Bachelor of Science, Bacterial Pathogenesis and Microscopic Human Anatomy) is a strong advocate for reducing health inequalities. As a passionate leader with skills in mobilizing resources to effect change, over the last 7 years she has contributed in executive roles in mental health awareness, anti-cyberbullying, and poverty alleviation initiatives, and has conducted research in the field of novel antibiotic alternatives. Having served as Senior Events and Logistics Director and now Co-President of a local humanitarian organization, her experience serving marginalized populations has driven her to explore pertinent societal issues and connect with vulnerable individuals. Lauren hopes to further the mission and expansion of The Tumour Foundation, empowering individuals with NF, and providing them with a strong support network. She currently works as a Mental Health Program Assistant in psychiatry.
Fatima Waqar ,(MBBS) has clinical experience of working in public and private tertiary healthcare setting. She is currently working as a General Physician on a Telemedicine Platform. With the determination to start her residency training in Canada, she is actively involved in professional development opportunities. Her passion is to start a practice that is patient centred and evidence based. She joined Tumour Foundation of BC to share her knowledge and experience with the community of NF to manage the diverse presentations associated with neurofibromatosis.
Colette Madsen (M.A.)
Colette Madsen has over 25 years experience in the non-profit community social service sector in program management and project development. She enjoys working with multidisciplinary teams whose aims are to improve the lives of vulnerable children/youth and families. As a mother of a (now adult) son with NF1, she has for many years benefited from the information and knowledge gained through symposiums; including, the educational resources to advocate in the school system. She is privileged to have this opportunity to assist in fund development, event support, to raising the awareness of NF, and addressing specific needs of children/youth with NF.
Interested in joining the Board? Please get in touch with our Executive Director by email at firstname.lastname@example.org for more information.
Desirée brings extensive non-profit experience to her role as the Executive Director at the Tumor Foundation. Having worked at NF Canada, the BC Neurofibromatosis Foundation, and the Learning Disabilities Association, she has become a strong advocate for the children and adulates battling NF. Desirée loves inspiring others and works as a coach and mentor for new leaders in the charitable sector.
Silvana Rangel, RN, BScN
Nurse Navigator Virtual NF Clinic
Silvana obtained her Bachelor of Science in Nursing in 2003. She has provided nursing care to patients in general surgical units, surgical and medical daycare, acute medicine, intravenous therapy, and pre-surgical screening departments. Silvana is humbled and grateful to be in a role of supporting, caring for, and empowering her patients. She regards her patients as ultimate experts in their own health and wellness and she strives to give her patients a voice in the health care environment. Silvana enjoys her role as patient educator and she enjoys learning from others and staying current in her nursing practice. In her personal time, Silvana enjoys walks in nature, time with her family, listening to audio-books, and volunteer work with children in summer day camps.
Delina has a strong background in administrative processes and has worked as an Executive Assistant in many positions. Delina is an expert at software programs, project management and bookkeeping. Delina enjoys her life in Victoria, BC and her family life outside of work.