The date and location has been set for the 2024 Annual Symposium!

Saturday, October 5th
Hilton Hotel Metrotown, Burnaby

Join us for an immersive and empowering experience at the 2024 Fall Symposium, where families impacted by neurofibromatosis (NF) come together once again!

What to Expect:

Prepare to be inspired by a lineup of distinguished speakers hailing from both Canada and the US, all focused on diverse aspects of navigating life with neurofibromatosis. Our event will delve into cutting-edge topics, including advancements in NF skin management, breakthroughs in drug research and clinical trials across Canada and much more.

Your Registration Includes:

  • Indulge in a delectable hot breakfast, setting the stage for new friendships to blossom.
  • Engage with four captivating guest speakers, delivering valuable information that empowers.
  • Savour a delightful catered lunch, enhancing both your palate and networking opportunities.

Secure Your Early Bird Ticket:

Don't miss out on the chance to expand your knowledge of NF, forge meaningful connections, and revel in the joy of learning. Register today at the early bird price to guarantee your place at this enriching symposium that promises education, camaraderie, and an abundance of enjoyment!


This year’s event is being held at the Hilton Hotel Metrotown Burnaby located at 6083 McKay Avenue You can book your hotel room by clicking on the button below.


Hilton Vancouver Metrotown’s underground self-parking is located below the Hotel and Crystal Mall. The parkade is accessible off McKay Avenue and Kingsborough Street. The clearance of the parkade is 6’6”. Offsite parking is available for over-height vehicles and tour buses and must be requested ahead of time.


The hotel is located one block from Metrotown Skytrain Station. The 19 and N19 transit lines have routes that pass near Hilton Vancouver Metrotown.

Top Five Reasons To Attend This Year's Symposium:

1. Access the most current and comprehensive information on neurofibromatosis from esteemed experts.
2. Meet and mingle with families who share your journey, fostering a network of support.
3. Immerse yourself in presentations by seven renowned speakers, each offering a unique perspective.
4. Indulge in a sumptuous catered hot breakfast and lunch, satisfying your taste buds while engaging with others.
5. Elevate your understanding, relationships, and spirits through a day filled with learning and camaraderie.

This year our event will only be presented in a captivating in-person format.

Ticket fees for the symposium help offset the cost of food, AV technology, and CART services (for individuals with hearing impairment).

If the registration fee poses a challenge to your attendance, we encourage you to reach out to our dedicated team at Limited scholarships are available, specifically designed to assist families facing financial difficulties. Your presence is important to us, and we're here to ensure that everyone can join in this year’s learning opportunity with world-renowned speakers.

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Results of the 2023 NF Symposium

The 2023 NF Symposium

Our 2023 summit has officially wrapped up, and what a fantastic event it was!

Nearly 50 participants from all over Canada gathered to share their stories, soak up new knowledge, and depart with renewed hope, especially after hearing the exciting updates on new research treatments for NF. Heartfelt gratitude to our incredible speakers who journeyed from both the US and Canada to enrich us with their insights at this year’s event. The wealth of wisdom, the connections forged, and the unwavering dedication of our speakers and guests have been nothing short of extraordinary.

Major thanks to Alexion and the Province of BC for making this event possible through their generous funding. Their support underscores the power of partnerships, and we're deeply appreciative of their commitment to advancing NF knowledge, understanding, and treatment.

Coming together, we empower ourselves with knowledge and take significant strides toward a brighter, more informed future, for individuals and families affected by NF. We hope you will join us at the 2024 symposium. Stay tuned for details.