REAL STORIES - VIDEOS

Everybody diagnosed with neurofibromatosis has a different story to tell. We hope you are inspired and encouraged by these courageous individuals who each face NF in their own way.
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Paul

Paul shares his many insights of living with NF. He’s not only lived with the disorder but also supported hundreds of other individuals in his role as the Founder of the BCNF.

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Lalaine & David

Lalaine and David are the parents of a young teen son with NF1. They share their personal insights to the challenges of raising a child coping with NF related issues with dignity, positive self image and faith.

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