Updated and Approved by the Board May 2018
The Tumour Foundation of BC has always securely taken care of the data it is entrusted with. However, the recent legislation has raised the bar for organizations, and as such we have reviewed our practices to ensure we remain secure and compliant.
We collect data so that we can improve the charity and the services we deliver.
We also collect data and permissions so that we can contact you about upcoming events and programs the charity offers, along with sharing other relevant information about neurofibromatosis.
We never sell your data to anyone. Ever.
We want to remain totally transparent and in the spirit of transparency, we've included the whole policy here.
The Tumour Foundation does not endorse unethical fundraising, unwanted communications, and takes all reasonable precautions to guard the personal and non-personal data and information we record.
For purposes of this Agreement, “Site” refers to the Company’s website, which can be accessed at www.tumourfoundation.ca
“Services” refers to the charity’s services accessed via the charity, in which users can receive support with neurofibromatosis, support the charity, and take part in the neurofibromatosis community within our social media channels and website.
The terms “we,” “us,” “company” “charity” and “our” refer to The Tumour Foundation, which is a charitable organization registered with the Canadian Revenue Agency. Charitable No. 13104 1352 RR0001
I. INFORMATION WE COLLECT
We collect “Non-Personal Information” and “Personal Information.” Non-Personal Information includes information that cannot be used to personally identify you, such as anonymous usage data, general demographic information we may collect, referring/exit pages and URLs, platform types, preferences you submit and preferences that are generated based on the data you submit and number of clicks. Personal Information includes your email, name, contact details, and time of submission, which you submit to us through contact forms and registration forms on our Site.
1. Information collected via Social Media services
The charity collects non-personal data provided by the analytic services of social media websites such as (but not limited to) Facebook, Twitter, and Instagram. This data includes comments, messages, likes, clicks and shares you may have enacted on our pages. This data is not personal to you, and is used to determine demographics marketing.
2. Information collected via www.tumourfoundation.ca
The charity collects non-personal data provided by the analytic services tied to our website such as (but not limited to) Google Analytics. This data includes page views, clicks, dwell times, and actions that you may have enacted on our pages. This data is not personal to you, and is used to determine the effectiveness of our website.
The charity collects personal data provided by you via contact forms that are hosted either on our website, or by third parties. These forms will always be signposted clearly as to their purpose, and with whom the data will be shared. However, in all cases the data will be processed and accessed by charity staff. In each case, the act of submitting their data to the charity is perceived as an act of permission: the user permits their data will be processed by the charity and any relevant third parties. This will be to enable registrations, event participations, or to deliver other charity services.
The charity collects non-personal data provided by the analytic services tied to our website www.tumourfoundation.ca, (but not limited to) Google Analytics. This data includes page views, clicks, dwell times, and actions that you may have enacted on our pages. This data is not personal to you, and is used to determine the effectiveness of our website.
3. Information you provide us when you subscribe to our e-mail marketing updates via www.tumourfoundation.ca
Definition: For the purposes of this point, an “e-mail update” is an email sent for marketing purposes, or to convey information to subscribers on our mailing lists. These emails are not the same as day-to-day correspondence between charities’ employees via email, which staff will do to deliver the operations and services of the charity.
The Tumour Foundation uses third parties that specialize in data protection and online communications to build our email communications and mailing lists. These third parties include, but are not limited to Mailchimp.
When an individual subscribes to one of our mailing lists, they grant permission to the Tumour Foundation to store, and use that contact information to make regular contact regarding the subject matter agreed in the subscription process. This will always be clearly identified. For example: “Charitable Campaign”, “Events and Updates”, News and Information”. Users subscribed to that list will only ever be contacted within those parameters.
3.1. Membership of Mailing Lists
The Tumour Foundation will not add your name and email address to a mailing list without your permission. The unsubscription process will be linked at the bottom of each email sent via these lists.
II. CHILDREN’S PRIVACY
The Tumour Foundation’s website and digital services are not knowingly directed to anyone under the age of 13. The Site does not knowingly collect or solicit information from anyone under the age of 13.
In the event that we learn that we have gathered personal information from anyone under the age of 13 without the consent of a parent or guardian, we will delete that information as soon as possible. If you believe we have collected such information, please contact us at firstname.lastname@example.org
III. HOW WE USE AND SHARE INFORMATION
In general, the personal information you provide to us is used to help us communicate with you. For example, we use personal information to contact users in response to questions, solicit feedback from users, provide technical support, and inform users about promotional offers.
We may share personal information with outside parties if we have a good-faith belief that access, use, preservation or disclosure of the information is reasonably necessary to meet any applicable legal process or enforceable governmental request; to enforce applicable Terms of Service, including investigation of potential violations; address fraud, security or technical concerns; or to protect against harm to the rights, property, or safety of our users or the public as required or permitted by law.
IV. HOW WE PROTECT INFORMATION
We implement security measures designed to protect your information from unauthorized access. We further protect your information from potential security breaches by implementing certain technological security measures including encryption, firewalls and secure socket layer technology. However, these measures do not guarantee that your information will not be accessed, disclosed, altered or destroyed by breach of such firewalls and secure server software. By using our service, you acknowledge that you understand and agree to assume these risks.
V. YOUR RIGHTS REGARDING THE USE OF YOUR PERSONAL INFORMATION
You have the right at any time to prevent us from contacting you for marketing purposes. When we send a promotional communication to a user, the user can opt out of further promotional communications by following the unsubscribe instructions provided at the bottom of each promotional e-mail.
VI. LINKS TO OTHER WEBSITES
VIII. CONTACT US