These are the Foundation’s priorities set by the Board of Directors on July 29, 2017

Clinic Project

  • Continue working with BCCH to present our case for the clinic to the site executive for buy-in
  • Explore other alliances for clinic space, i.e. Cancer Agency, St. Paul’s Hospital, Diamond Centre
  • Explore creating a virtual clinic concept through a website
  • Identify clinic and IT champions
  • Create an uprising in the membership to support the vision


  • Host symposium February 24, 2018
  • Create additional resources, i.e. agency brochure, physician handouts
  • Publish next issue of Inspire magazine


  • Expand NF Support Line
  • Continue with adding videos with the Support Through Technology program


  • Launch Shine A Light Campaign in 2018
  • NF Awareness Month activities
  • Host mall displays and attend community Events, i.e. tables at Italian Days, Commercial Drive, Kits Fest, West End Days.

Family Events

  • Summer Barbecue
  • Holiday Luncheon


Fundraising Events

  • Stand Up for NF comedy night
  • Annual Appeal
  • Cocktails for a Cure
  • Kick it for NF
  • Scotiabank Charity Event

Research & Partnerships

  • Liaisie with external pharmaceuticals/NF clinics/experts
  • Explore partnerships with other organizations, i.e. Learning Disabilities, Autism Network, Cancer Agency, Rare Disease groups,etc.