Saturday, October 26, 2019

Take Control of Your NF at the 2019 Symposium

Each year at the annual symposium we bring together NF experts  locally and from around the world to share with families current information on NF, including how to manage the symptoms of NF, and updates on treatment strategies. Participants also have the opportunity to ask questions and connect with other families on the NF journey from across the country. Meals are provided along with lots of social time and fun!

Join us to learn the latest developments & connect with others!

Date: Saturday, October 26, 2019

Time: 7:30am - 5:00pm
Location: Holiday Inn Riverport Hotel
Address: 10688 No. 6 Road , Richmond, BC
Book Online Here!


to September 30th
$50 $17

  • Hot buffet breakfast
  • Ten highly informational & engaging presenters
  • A delicious catered "Birds of Feather luncheon"
  • Networking opportunities
  • A link to the replay of the event
  • Plus, some surprises!

  • Your online pass to view the symposium from start to finish
  • Opportunities to engage with the presenters and hear the answers to your questions in real-time
  • link to view the replay of the event in case you are busy and can’t view the live event.



Live Your Best Life with NF!

Empowering yourself with knowledge about neurofibromatosis (NF) puts you in back in control of your health. Learn from both NF clinicians and patients living with the disorder at our 2019 symposium.

This fun and informative event is offered only once a year. This year we have speakers presenting on the following topics:

  • Genoytpe and Phenotype Correlations in NF1
  • Pregnancy and Reproductive Options
  • Accelerating a Gene Therapy Cure for NF2
  • Employment Challenges & Solutions
  • Empowered Patients-Navigating the Medical Maze
  • A Resiliency Formula
  • Personal stories, and much more!

Your ticket includes:

  • Hot buffet breakfast
  • Ten highly informational & engaging presenters from across Canada
  • A delicious catered 'Birds of a Feather' luncheon.
  • Networking opportunities
  • Plus, some cool surprises

Here’s what last year's guests said about the event:


“So impressed with the quality of speakers. Two thumbs up.”

"This event gave our family much needed hope!"

“What an incredible day. We learned so much and met some really lovely people.”



We hope you will join us for this year's event.

Early bird tickets are $50 to September 30th. Regular price $65.

Early bird tickets are available here:    SYMPOSIUM TICKETS



A full listing of speakers will be published later this summer.

Can’t make the in-person event? Join us via the Live Stream.


Thank you to our sponsors and supporters of the 2018 Symposium:

We acknowledge the financial assistance of:

The Province of British Columbia


Check back soon for registration and agenda details.