INSPIRE MAGAZINE – 2022
Enjoy the anniversary issue filled with faces and stories of courage.
Thank you to the Province of BC for making this publication possible.
Archives: Downloads
Cutaneous Neurofibromas in NF1
Cutaneous Neurofibromas in NF1
Parents Resource Guide – Portuguese
Parents Resource Guide – Portuguese
Parents Resource Guide – Punjabi
Parents Resource Guide – Punjabi
Parents Resource Guide – Chinese
Parents Resource Guide – Chinese
Parents Resource Guide – English
Parents Resource Guide – English
This free downloadable book is uniquely designed as a resource for parents of children with both NF1 and learning disabilities. Whether your child is just entering kindergarten, or is in their high school years, parents will find relevant material and strategies in this guide to help their student excel with their education.
Inside you will find information on:
Explaining NF1 to Teachers, Social Challenges Common to NF1, Attention Deficit Disorders and NF1, Psychological Implication of Learning Disabilities , plus much more.
Thank you for still having this book available. It is a helpful resource to the newly diagnosed NF family I work with, especially when informing teachers and staff. ~ A. Patterson, Neurofibromatosis Northeast
Thank you to Pacific Blue Cross who provided the financial support for the translation of the Parent Guide.
INSPIRE MAGAZINE – 2020
INSPIRE MAGAZINE – 2020
Featuring stories from the NF community, fresh photography and interesting articles, a must-read.
Patient Checklist for Managing NF1 A brochure to share with your healthcare provider on recommended check-ups and appointments for people living with NF1.
Patient Checklist for Managing NF1 A brochure to share with your healthcare provider on recommended check-ups and appointments for people living with NF1.
https://www.tumourfoundation.ca/wp-content/uploads/woocommerce_uploads/2022/07/TFBC-NF1-Patient-Brochure-May2020-odi7xc.pdf
Physician’s Guide to the Management of NF1 A research-based resource for healthcare providers treating patients with NF1.
Physician’s Guide to the Management of NF1 A research-based resource for healthcare providers treating patients with NF1.
Self-Monitoring Malignancies in NF
Self-Monitoring Malignancies in NF
A handout about assessing the size and development of NF1 tumours. Includes information about when to seek medical care.