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We want to know what neurofibromatosis means to YOU! WHO? Competition is open to kids and teens living with NF in BC, and their siblings. Two categories: 12 and under and 13-18 years. WHAT? Use markers, crayons, paint, pencils, or other method to create artwork that represents neurofibromatosis in some way. Show what your understanding […]

Shine a Light on NF is an initiative started by the Children’s Tumor Foundation in New York, that brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green. In 2017, 159 landmarks across North America shined a light and, with the help of our friends at the Children’s Tumor Foundation […]

Scotiabank Charity Challenge 2018 They Did It! They ran, walked and pushed strollers through the Scotiabank half marathon and 5km charity challenge on June 24th. We are so proud and deeply grateful of our team’s hard work training and FUN-raising on behalf of the children and families affected with NF. $15 319 was raised for […]