THE NF CLINIC - It’s Happening!

The Tumour Foundation’s virtual healthcare team lead by Dr. Gelareh Zadeh saw its first adult patients with NF1 from across BC on October 19th.

While some patients received the good news that they were on the right track with the care directed by their family doctors, others now have a new plan of action to access MRIs and specialists.

Living with neurofibromatosis (NF) is challenging enough without having to educate your doctor about the condition. But that is the reality for patients in British Columbia after they receive a NF diagnosis.

As there has been no NF expert or specialized clinic in the province for patients with NF to go to receive treatment, individuals were forced to become experts in managing their own care.

Can you imagine your doctor looking to you for answers and direction on how to treat your illness? That’s what patients with NF experience every day.

It has been a long journey to get to where we are today, but our belief that individuals with NF deserve better care than is currently being provided has fuelled us past dozens of obstacles. And we won’t stop now!

We still have a long way to go to make this clinic pilot project a permanent fixture in BC. With your support we can improve the care and the lives of individuals affected with NF across British Columbia.

If you would like to know more about the clinic or take part in this pilot project please get in touch with our clinic nurse at 1-800-385-2263 or by email at

We are stronger together.

We thank you for your ongoing support.