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We want to share a story with you about a little boy with a big tumour. Jaxon at eight years old knows a lot about pain--too much for someone his age.
He was diagnosed with neurofibromatosis type one (NF1), a genetic disorder which causes tumours to grow on nerves throughout the body, when he was just two and a half years old.
At the age of five, a large tumour was discovered in Jaxon’s back. This tumour runs down through Jaxon’s pelvic bone, through the front of his legs, and the back of his thigh. The daily pain caused by the tumour is only managed with chemotherapy. Jaxon also lives with a tumour in his brain and scoliosis, a curvature of the spine, which is worsening as he grows. It has been hard for Jaxon’s family to come to terms with his diagnosis.
The Tumour Foundation’s mission is to support families through support, education and awareness.
“The Tumour Foundation helped us by providing information about NF,” Jaxon’s dad Mike shared. “Our family frequently uses the Foundation’s website to keep up-to-date on information and research regarding NF. The Foundation also connected us to other families at their annual symposium. Knowing we are not alone has helped my wife and I.”
Despite his daily pain Jaxon continues to thrive. He is a mischievous little boy who enjoys school, Lego, and playing with his friends, just like every other kid. “This is a very scary time for us, but we are hoping for the best and always looking forward to the future, new treatments, and cure to end NF.”
Jaxon’s dad shares that although it breaks his heart to witness what people with NF deal with, he has to help in any way he can.
Mike wholeheartedly believes in the Foundation’s mission, so much so, that he joined the Board of Directors this year. Now it’s your turn to help.
Please join Mike in making a difference in the lives of all children and families living with neurofibromatosis with a financial contribution to the Tumour Foundation of BC. You can do this here.
NF is the easy way to say neurofibromatosis, but there's nothing easy about living with NF. NF is not a rare condition. It is the most common single disorder of the human genome. There are over 13,000 Canadians currently diagnosed and living with NF1 alone. Your donation helps us improve the lives of individuals and families affected by neurofibromatosis.
Your generosity makes supporting families like Jaxon’s and Mike possible.
By making a recurring gift to the Tumour Foundation, you provide a steady stream of much-needed funds - on a monthly basis. A recurring gift allows you to express your support of our mission more fully than may otherwise be possible. You can set-up your monthly gift here.
Make a Tribute Gift
Giving a gift in tribute to friends, family members and loved ones helps you celebrate their accomplishments and keeps treasured memories alive. A tribute gift is a meaningful way to honor someone special while benefiting research supported by the Children's Tumor Foundation. To make a tribute gift, please contact our Executive Director at 1-800-385-2263 or firstname.lastname@example.org
Double the impact of your donations! Many employers sponsor matching gift programs and will match any charitable contributions made by their employees. To find out if your employer has a matching gift policy, contact your Human Resources department and request a matching gift form. Then return the form to us.